Thank you -- it's all I've got

I want to thank all of you who have commented on my blog of late. And, thank you to those signing up to follow my blog for that very special gift.

I have been, and I still am, in a very hard place. Your words have comforted me more than you could know. Its funny, I really don't find it difficult to open up here in this place of absolute wide open public exposure. I find that rather astounding, don't you?

Well, you shouldn't. It is because of you that I feel safe and protected and un-judged. Yes, I know there is no such word (well, in most dictionaries), but there certainly is the feeling. I know that no matter what I say, you will not judge me. I am simply saying how I feel and what I am thinking. Unvarnished, unadulterated, bold faced truth. My truth, anyway, at a given point in time. And, I thank you so much for allowing me that. Somehow it lifts some of the weight of the unending pain and exhaustion.

Your comments don't make the pain go away. They don't refresh the unyielding fatigue. But, they sure do fill me up. They fill me with up with a warmth of support and understanding. They make me smile, they touch my heart. They do revive me to fight thru another minute, hour, day.

So, thank you. Thank you 100 times over for taking the time to leave a little bit of you with me -- to help me persevere, to keep me company, if only for a moment, and to help me lean back from that slippery, dark, deep hole.

Thank you.
me,
CJ

Befuddled, Bemused, Bamboozled, Flummoxed

Procrastinator Extraordinaire-Reasons why people procrastinate: Perfectionism, Lack of confidence, Can't make decisions, Don't know where to start, Depression

Perfectionist : A perfectionist is someone who lives with a constant sense of failure because their achievements, no matter how impressive, don’t ever feel quite good enough.


Unfocused, Unable to Concentrate

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Do you recognize yourself? Well, it fits me to a t or to a tee, depending on your take on the phrase. (I googled it and read 8-10 answers--which explains A LOT about me!)

I have been absent from my blog for a variety of reasons (see all of the above). I have also been HURTING, as have many of you ---what is up with this summer? I have been sick with a stomach bug and my husband came home for a short visit. And, I don't know what to write about. I have several ideas, some even started in draft form waiting in line for me to DO something with them.

I am not sure what is wrong with me. I had told Rose that I feel pressure to write, to write more. Most of you write almost everyday, if not 3-4 times a week. I average once a week. Is that acceptable? I don't know. It really isn't to me. I feel like I am an insult and embarrassment to the rest of you. I feel inadequate. I'll tell you, I don't need any more help to feel like that. My inability to do anything useful because of my health is plenty enough fuel for that.

I know what is going to happen now. All of you wonderful, supportive, caring people are going to tell me it is alright and I am doing fine. Please know that I am not fishing for support. I am just laying it out there--what I feel. It is what this blog allows me to do. Be honest. Painfully honest.

I have found that my most recent posts have touched people in a way I had not imagined. I have been able to verbalize what some have been feeling, feelings they have not been able to express on their own blogs because of who has access to their posts. I have purposely tried to keep my blog as anonymous as possible so that I am able to speak my mind. I do not have anyone I can share these feelings with. You are my closest friends. You understand what I am going through, you know how tough it is, how painful and exasperating it is. You know the firestorm of emotions that I live with, that I must control. You know the unconscionable remarks and behavior of others I must endure because of their ignorance of chronic illness. And of their unwillingness to learn or to listen or to try, just try to understand.

I have not told any of my family how they can find my blog. Not even my sister who also has Fibro. I hope that's not too selfish. But, I need this for me.( She could start her own if she wants to. It wouldn't necessarily end up connected to me and my online group. I guess I would deal with it if it did.) If she read my blog everyone in my family would soon know what I had said or what I was thinking or feeling. No, she is not a gossip. You know how it is though, stuff just comes out. I cannot risk that. I need this lifeline.

So here, CJ. You have a new post, rambling though it is. Woo hoo for me. But, I do hope this explains a little bit more about me and about what has been going on with me recently.

It is what it is.

Hugs with fondness and appreciation,

CJ

Let Me Introduce Myself...

Hello. I am CJ, let me introduce myself. I am an almost 56 year old menopausal (Does it ever end? Is anyone ever post menopausal?) married 27 years (holy smoke!!) homemaker with two children, 25 and 22 years old. I still call myself a homemaker though I haven't really fulfilled this role for four or more years. I call myself a homemaker on those forms that ask "Occupation"? I do this because I can't think of any occupation title that describes what it is I do. This would be because I am not sure exactly what it is I do... anymore.

I hear the phrases, "I am not my disease" "My disease does not define me". This puzzles me. I am thrilled for those that can say this, those that can think of themselves and not think of their disease. I am in awe of their mindset. I have not gotten there yet. I have not even driven by it, much less walked. I am in the coliseum...at the very top...in the nose bleed seats...behind a column.

I am CJ and I have chronic illnesses. These illnesses, Fibromyalgia and Chronic Fatigue to name a couple, shape every portion of my life. I cannot think of me and not think of them. They have taken away so much of me. It truly is like a puzzle. I am the puzzle, a puzzle of many colors, of many small, sometimes oddly shaped, pieces. Fibro and CFS have smashed into the puzzle and have lost so many pieces that I am not sure if I can patch me up.

However, I am trying to put the puzzle back together, just like Ol' Humpty Dumpty's men. I am fairly certain it will not be the same shape it was before, some pieces are gone forever. Perhaps I can fashion some new pieces that can fit with the old. Maybe I can reshape some of these pieces to look somewhat like they did before, shape them well enough to fit in the puzzle.

If I am able to gather all of the pieces of me, how do I go about putting me back into some semblance of what I once was? My blog, CJ In Time has been surprisingly helpful in that effort. I am not sure what I expected when I started it, but it has become a lifeline for me. It began when I found "I Really do Miss Myself"(now Seeking Equilibrium). I could sure relate to that title. And, I found I could relate to Rose. And, Rose not only commented on my posts, she introduced me to other bloggers. I then found "Graceful Agony". This title I could not relate to...but boy did it intrigue me. How could anyone make agony graceful? Jolene has. And she has lifted me up, too, just like Rose, and Miss Dogkisses, and Lynn-Marie.

I have a long way to go, putting CJ together. Because of this chronic illness community of bloggers I am feeling hopeful again. One might think such a serious topic with such serious issues would be a total downer. But, we "get" each other. Even in our posts that whine, we get a lift. Someone always responds "I know what you mean" and, immediately we are not alone.

Hi, I'm CJ and I have chronic illnesses. But, I'm not whipped yet.