So, Rose asked:
"What are they doing for your blood pressure!"
They are filling me with more drugs...so far they are not doing much. I was in the hospital a couple of days Halloween weekend--couldn't breath! They did tons of tests as they were afraid it was my heart. Luckily my heart looks fine. I have been feeling horrible for a couple of months, with the breathing difficulties getting worse. I finally saw my PC again and he was worried and wanted a CAT scan. Since it was Friday he told me to go to the ER so he could get the results faster. Then the hospital decided to hold me hostage!
They are still not sure exactly what the problem is (perhaps chronic asthma and/or chronic bronchitis) and have sent me to a pulmonologist. That has me shaking in my boots because he is going to have a coronary himself when he sees my list of meds--and then he is going to take me off a bunch of them! I know he will and I don't know what I am going to do. We have worked so hard to come up with a mix that at least makes most days tolerable. Damn it, it never ends. He is also probably going to order another sleep study and they will find out the same thing they did last time -- I don't sleep. And, they don't know why or what to do about it.
Ah, the life of an overweight fibromyalgia patient. It is either because of the fat or the fibro. A pat on the head and out the door....
I really do hate my life. Sigh...I will try harder to lose weight. But the exercise has me stumped. I have so many other health problems along with the Fibromyalgia and Chronic Fatigue. So, please someone tell me, what can I do?
I am really down and so far passed tired I have no description of how tired I am. I haven't read much of my buddies' posts in the last month or more. I truly miss you, but I am so darn tired, by 1:00pm I am done in. The scary thing is though, I don't want to do anything, even read my dear friends posts, much less write one. It has taken the better part of two hours to write this.
I want you all to know I am thinking about you and praying for you, and worrying about you, too.
Fondly,
CJ
Oh sweetie.........my heart breaks for you. I am so scared that they will take you off some meds. I just hope they don't do that. Just know I'm here for you!!
ReplyDeletexoxoxox my friend......
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ReplyDeleteWhen I was in the hospital they cut the dosage of my major pain med in half (!!) and said I couldn't have the other two at all!!! My son had forgotten to take my purse home with him (Bless his scattered brain!) so when the nurse left I got up and took one of the ones (Vicodin) I carry with me at all times (the other one they would not let me take is really an anti-inflammatory). I know I shouldn't have, some meds suppress respiration. I just couldn't face the pain I knew was going to intensify with all of the tests they were running me thru. I just needed to be able to get some sleep that night (I got very little as it turned out - who does in a hospital?). My rheumatologist wanted to send me to a sleep doctor only as a last resort because she knew he would not like the list of meds I am on. Now, with the hospital doing this without consulting or even explaining it to me...thus the shaking in my boots!
ReplyDeleteOn top of that I have eye drops to take EVERY night for my glaucoma. "We won't have that until the morning." I NEVER got them. I went into the hospital about 3:00pm Friday and got out about 7:00pm Saturday. I am diabetic. They finally fed me about 10:00/11:00pm Friday night and once on Saturday about a half hour before they discharged me.
What are you gonna do?
CJ
I hate hospitals and this is the reason why! The care is substandard. Make sure they don't take your meds. I'll be watching and praying it goes okay!
ReplyDeleteHi CJ,
ReplyDeleteI'm so sorry that you are having such a hard time. I have pulmonary issues too, quite serious, and it is scary. They have never properly diagnosed me, also scary, so I hope they figure out what is going on with you. The last time I went to the hospital for low heart rate they asked if I could stop my pain meds for the night. No, No and No I told them. Absolutely not! How could I? How could any of us?
I did stop taking my breakthrough meds, but only while I was there. The doc said it was okay to start back on them when I got out.
I also went to a specialist recently who I was afraid might try to take me off pain meds but he wanted to increase them. Sometimes, I guess, we have to trust those doctors. I think telling them in detail the severity of the pain you experience helps them understand better.
I sure hope you are okay. I hope they treat you right. I'm thinking of you and with all my heart am wishing you well -- Please take good care of yourself. You are missed!
With love,
Miss Dogkisses.
Hey sweetie! How are you????? Are you home from the hospital? What did they say?? Just drop me an email and let me know you're okay....
ReplyDeleteYou are missed! (Dogkisses is so right!)
Hugs sweetie!
Hi CJ,
ReplyDeleteI wanted to check in, see how you are and let you know I'm hoping you are doing okay.
Warmest well wishes to you from me...
Hello CJ, I sure do hope you are okay. I've been thinking of you. Don't mean to worry you but sure wanted you to know I'm thinking of you, and with all my heart wishing you healing. You are missed!!!
ReplyDeleteWith love,
Your friend,
Miss Dogkisses
Miss you CJ and hope you're doing ok. Just know that i'm thinking of you and praying!
ReplyDeleteHugs,
Rose
I actually posted on my blog, and I thought of you since I haven't talked to you in forever. I came by your blog and found this one. Wow, I am sorry all this has happened. How are you doing now? I know it's hard, believe me I know. Lately, I have been really down in the dumps because I am just feeling like I have no life anymore. That I'm not really living. I'm either on the couch or in bed. Plus, I'm having serious knee problems that may require surgery, which scares me to death. Anyways, I know it's hard to keep up with your blog and friends' blogs and such, I speak from experience with that, as I have been horrible at it. But try not to phase it completely out of your life. You will be amazed at how much better you feel from getting your feelings out, realizing you're not alone, and having the support of your friends. Trust me with that. I hope to hear from you soon, and hope you are feeling better, and in the meantime I send you *hugs* and you will be in my thoughts and prayers!
ReplyDeleteHi CJ,
ReplyDeleteI was hoping to see you had posted a word, or two. I'm thinking of you...
xoxoxo ((((hugs))))